Good Morning Everyone;
I have been up for a few hours already- Just reading, and a few notes in my inbox too.
I was up to the hospital yesterday by 6AM.
Casey was asleep after a very restless night...
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Not wanting to use the flash...
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After checking her stats, I sat in the chair, read in my book, and rested a while.
Just watching her breathe too- Times like this, the rise and fall of her body is nothing short of a miracle to me.
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These are good readings, especially given the fact that she just had her 5th major surgery in little over a year.
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I even napped a bit after sneaking in so early.
Then heard this little sound... "Mom?"
Yes. She was awake. YAY!
She'd had a tough night, but was happier and made more comfortable with the adjusted pain meds on her machine.
Unlike last year, her kidneys seem to be working better.
Her red blood count was a bit low yesterday- Will reserve comment on that until after I see todays counts.
Her WBC was high- Still only 1/3rd of what it was following her TP/AIT though, so that is good.
Her blood sugars were off the chart high (for her)- They had given her insulin on Friday night, and again yesterday morning...
Dr. Sutherland had previously mentioned that he wanted to give her islet cells a break after this surgery. Yet when I asked the nurse about giving her insulin in her IV, the nurse said they "didn't want it to drop too fast, or Casey would really be sick!"
I asked Dr. Sutherland about it all, repeating what the nurse had told me. He wants it in her IV, and left the room saying "that nurse is wrong"...
Guess his notes were misread and not understood.
* Casey's islet cells are very important to him. (Not to mention how very important they are to Casey).
Maybe today her blood sugars will be better managed.
I came back to the hotel and rested a bit; going back up then about noon.
Casey was awake, and showed me her new (old) scar.
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No Velcro yet. hehehe
They used glue this time too.
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She was allowed to eat...
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Ok, so it's only ice chips, but better than nothing at all ...
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Since you can not keep this girl down for long, she was up and moseying about.
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The bed fairies came in and changed her linens while she was out.
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Her nurse, Michelle, (a real sweetie), was 'spotting' her while she walked.
They stopped to be weighed.
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Casey weighed in at 116.5
This is the most she has ever weighed, with the exception of before they removed her megacolon.
So I am a bit concerned that this might be more water weight/retention- She is receiving 150ml/hour of potassium chloride. Will have to check her output when I get up there this morning.
Perhaps her kidneys do need a bit more time after all.
I ordered a pizza for supper last night. (Nothing like homemade, but yummy just the same). Made even better with real tomatoes on it.
Oh, and I'd had a garden salad too!
I'd just taken a pill for my back (and my mouth) before this arrived, and I'd wanted that to work before I chowed down.
So, Punk had to wait and be content with a sniff and a whiff or two.
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As she peeks over the bed toward the table...
hehehe
Hope everyone is having a grand weekend.
More later, I'm sure.
XOXO
Anne
