Entry for March 30, 2008

Entry for March 30, 2008

♫ Doo-Doo-Doo ♫
Looking out my ♫...
?? hotel window ??

.

Good Morning!
Kind of a dreary morning here- Cloudy skies, with the potential for T~Storms early tomorrow morning... And turning to snow then after those.

.. .. .. .. ..
~Rain, snow, rain, snow, rain, snow~
It's just GOT to end sometime, doesn't it???

.Here's my forecast from WBAY TV...

Good morning Anne,
A strong storm system is heading for northeast Wisconsin as we go into the early week. Ahead of the storm, skies will be mostly cloudy today with a few sprinkles here and there. Brisk southeast winds will become gusty northeast winds later tonight as the area of low pressure arrives.
Look for heavy rain with maybe some thunder from Green Bay and to the south. Some flooding may be possible, especially in low-lying areas and near riverbanks.
Meanwhile to the north, heavy snow will fall.

Oh well...

 

.

I went out to the big shed yesterday morning to get a bit of a headstart out there.

Getting in was a big problem...

.

I took this photo last week,
(even before most of these melting days).
Notice too how the ice has gone up the apron and over the doorstop...

.

.

I did manage to chip away at the bottom of the door.
Only to realize that the door pull was also frozen solid in that ice too. (Nothing that a couple of good kicks couldn't fix though)!

Finally to heave that old wooden door up.

.

.

Ruh~Roh!

A brand spankin' new indoor ice rink!

.

.

I dug out the old fan, and ran it all day to try to get some of this moisture out.
In doing that, at least I managed to get to some dry concrete!

.

.

Short~Lived joy...
The only dry concrete was UNDER where I had run the fan.
.

.

.

And so I see that I have my work cut out for me.
No, I will NOT run my dehumidifier out there either...

.

Maybe just strap on those old skates and get busy.
?
In the rain.
?
Not.

.

.

I shall have to chop out a little river for the water to run though... The mile high snowbanks are finally coming down a bit, so maybe there is/can be room for it to run; because I sure as heck don't want/need any more water in the garage.

Needless to say here...
Bad mood.
Headache.
BOTH are present and accounted for
~So's the danged jackass.

Before we left for Froedtert, Miss Milly got a brand new beef bone...

.

.

She had to check it all out before she went and buried it too.
Guess it tastes MUCH better when it has rotted a while?

.

.

Punkie got one too, but was more concerned about Casey at the moment.

.

.

.

.

Even down in Milwaukee...

.

Punk wakes Casey up!
And kept a close eye on her always...

.

Well, until we got back home...
And it was back to her bone!

No cats allowed!

.

.

Now, that bone MUST be guarded 24/7 .
Sputnik can look at it, but he dasn't even lick it!

.

.

Guard. Guard. Guard...

Unless the "Sputty~Perp" is fast asleep...

.

.

Just where I want to be!
hehehe

.

.

Been playing on here for too long now.

.
Not too sure if I agree with this or not-
(Maybe one of you can interpret it for me)?
And maybe I hadn't had enough caffeine when I did it...

.

Time for me to fly! (er, I mean 'skate')...

Have a great Sunday!

Love to all.

XOXO
Anne

Free Hit Counter

Originally posted to my Y! 360, Sunday March 30, 2008 - 10:22am (CDT) 5

We Are Home

We Are Home

Sputty looks as though he is saying,

WHO ARE YOU AND WHY ARE YOU IN MY HOUSE???

.

Good Morning;

I know you await a magical update regarding Casey.
I do not have one at this point; and this damnable waiting 'game' continues...

Froedtert would like to do an EUS, (endoscopic ultrasound)- It would definitely be another diagnostic tool, and not a solution. Kinda saddened by that, as I see how very much pain she is in all the time.
They will call us on Monday to get that all set up.
More news then? ...hopefully anyway.

To say that this has Casey very depressed, I believe, is a gross understatement.
I know I whine and complain about my migraines, and the barfing, and the anxiety that can leave me almost paralyzed, etc etc etc.
But really, these are things that mean almost nothing when compared to what she is going through.
And yes, I was up last night with my own fookin' head... and if it wasn't Saturday i would go in. But then again, with the morphine and the oxyco~something that Casey is taking, I don't think I have a driver anyway...
Hmmm...
And if Berta doesn't get her danged license back soon, I will have to beat her, pregnant or not.
hehehe

We had to make a bit of a pit stop on the way home yesterday afternoon, as Casey had yet another "episode" of not being coherent, nausea and vomiting. This time with difficulty swallowing.
As this happened after lunch at the Planeview Restaurant in Oshkosh, I called the clinic and they got her in as soon as we could get there. Her heart rate was still over 100- As it had been down at Froedtert as well. And she sat slumped over in a wheelchair as she was examined... (Sorry, that invisible jackass that kicked me in the middle of the spine really did a number on me, so there was no hope that I would carry her in)...
This time, it was blamed on her meds...
Maybe. Maybe not.
Let's see... We have meds, pain, anxiety, etc etc etc...
Hmm?
(Just curious to what they will blame her next "episode" on is all).
And no, she is not allergic to a pancake!

She is still alseep for now. And she SO needs that sleep; as well as the bit of escape it provides for her.

I need to get outside and get the big garage open. It is sunny and breezy today, a good time to get out there and get busy for the sale.

May you all have a beautiful weekend!
I am going to try because by tomorrow night I hear it may be snowing...
>sigh<

Love to all.

XOXO
Me

Free Counter

Originally posted to my Y! 360 Saturday March 29, 2008 - 09:44am (CDT) 2

Casey and Me...

Casey and Me

.

.

Good Morning Everyone;
Thought this was a very apt picture, and stolen from an email received.

Life in Flintville a few nights ago can best be described as a certain "Wits End."

I think Casey and I were both feeling more than a bit ugly...
(Very honestly, I don't know how come we weren't at each others throats much sooner)...

Patience perhaps.
Or more probably the thought that if we don't speak of what we might be thinking, those thoughts/fears will never be real.
The old "speak a line, jinx it fine" school of thought. Which is merely an open invitation to just "gunnysack" our feelings.
Sooner or later the gunnysack is full...

As Caseys mother, any words that I can write here will NOT accurately convey the fear I have and hold for my youngest child. And it is a fear that threatens to choke me at times.

It is a fear Casey has called me on too.
She does not see the tears I can hold in, (and erroneously sees this as strength).
I tell you now, it is most certainly not "strength" of any kind.
It is only the knowledge that if I do start crying I will never stop.

Her own fears are the same as my own. It is a fear of losing the life, or any part thereof, that she/we have come to cherish.
It is not a fear of pain.
It is not a fear of dying.
Her pain, racking her body most days, and the wonder of why pain pills will work for a while, and then quit?

The 'any part thereof'...
We once again spoke of her father.
Absentee at best. (At 'worst'? I don't have the energy or the need to go there today)-
Suffice it to say that we are happy that Randy and Richard care enough to call, to come and see her, and not to be afraid to say "I love you" to her.

Fathers are NOT genetic.

Oddly then, that same thought goes back then to all of my children.

Not only one, though admittedly, this is absolutely where the lions~share of my attention and support MUST be for now.

Not for only two. Although without Robertas constant and abiding love and support, there would have been many days that Casey and I would have completely lost our minds.

But yes, I gave birth to four daughters.
As many of you know, the eldest two are off on their own selfish little journey that quite obviously does NOT include their baby sister.

Two of you have written to ask about The Trainwreck II.
Neither has called, neither has sent her a card, neither has even emailed her.
Nor has my sister, Mary.

These are their choices to make.
I cannot, will not, be responsible, or reflected, for the cruel actions of my two 30~year old children who were raised much better than this.
Nor can I be held liable for my 50~something sisters lack of support.

As stated above, these are their choices to make.
Dennis.
Zoe.
Jennifer.
Mary.
They made their beds. They sleep in them. Loss of any kind is never a warm companion though.

And so our 'words' had little to do with anger. But almost everything to do with frustration and fear. Whether these frustrations and fears were/are conceived or perceived as real or imagined; they are there.
And our ahem, 'words', (louder at the beginning), brought us to realize that we were only feeling MORE for the other than for ourself.

She is scared for what the next step in her treatment will be.

...For now it is a fear of the unknown, mixed with the damnable 'what~if's' that get thrown in along the way.

And she is tired of losing too.
Losing her education grants because of her illness was the hardest slap~setback she has faced.
Losing her last two jobs because she was hospitalized; only to return to be 'written off' their schedules.

I posted this photo in a recent blog...

Casey does not like it because she does not recall much of what happened that night when her heart went haywire, and God threw in a seizure to boot...

.

.

She does not recall Greg, Roberta and myself, (not to mention probably a few of the medical staff), sending our Faith through to her as she shook, and with pain.

I took the picture as she had mostly quieted.

Much like the scenes on TV, there were medicine bottles and syringes laying all over the floor, and even under the bed as they brought her bed back up to a reclining position. There were wrappers from meds too. (Housekeeping must have had fun with this room when they got to it).

She does not remember...

But we do.

It is a captured still image that reflect SO much more than Casey resting...
To me it is all of the love, all of the anguish, and all of the pain that we all felt FOR her during that long hour +...

We do not know what is next. But we do know this much. With our Faith and our own love for one another we can face whatever 'next' proves to be.

Love to all.

XOXO
Anne

Hit Counter

Originally posted to my Y! 360, Wednesday March 26, 2008 - 08:53am (CDT) 10

Our Easter Week(end)...

Our Easter Week(end)...

~

Good Morning Everyone;
Hope your Easter weekend was special.
Mostly we just lazed around... Kind of a nice thing to do. (And it compliments this malaise I seem to have of late so very well)!

The picture above, taken a few months back, but oh so appropriate after our visit to the vet on Friday.
When Doc Spires called for Punk, she headed straight for the exit!!!
(Don't even try to tell me that dogs don't have the power of recall)!
Once IN the exam room, this 93 pound beast of mine then tried her level best to "hide" under a chair...
Didn't work.
But with the exception of a small tear yet in that third eyelid, she is good to go.
Say "YAY!"

Now for CaseyFace...
A rough weekend for her; and yet, she was bound and determined that she would make our meal last night.
She made garlic chicken, mashed potatoes, and for the veggie, green beans!
So very yummy! (Poor kid paid for it later, but it was so good too)!

One of you has asked for the specific medical language from her hospital report, so here it is, condensed:

..."There is a small nonspecific low density lesion in the right lobe of the liver, which is too small to characterize."

This was done sans contrast dye. They wanted to see if there were any areas of calcification within the pancreas, and the dye would have made those areas harder to see.

On another page then...
"Focal linear opacity in perihilar central right lung, suggestive of atelectasis, (new since 11/10/07). Left lung remians clear. Mild bilateral apical thickening."
"CONCLUSION: Mild central right perihilar subsegmental atelectstasis."

(This now, from her ECG)...

Sinus tachycardia.

Nonspecific ST abnormality

***ABNORMAL ECG

When compared with ECG of 10-NOV-2007.

**Nonspecific T wave abnormality evident in inferior leads.

**Nonspecific T wave abnormality evident in Anterolateral leads

_________________________________

So, there you have it.

With special thanks to my friend WYCK, who has translated a few items for me.

I still do not understand the 'lingo' for her ECG/EKG; the ST waves, and the T waves. (But I have no problem whatsoever understanding the word "ABNORMAL").

Oh, and with respect to both her ECG and her CT Scan, where the writer has used the word "nonspecific"...
I also have no problem believing that this concise medical explanation is to be interpreted in laymans terms as "we really don't know what the heck it all is/means."
Translation: Cover your @ss, doctors.

Caseys doctor is back from Brazil, thank God. He called last night to be updated on all things that happened in his absence. Not a direct quote here, but he did tell Casey how relieved he was that she 'could get to Froedtert because frankly Green Bay does not have the knowledge or the resources to care for her properly.'
Ya think?
Friday will not come soon enough...

As for me...
Anxiety attacks seem to be thriving just fine this Spring. My immodium has been my best friend for almost the past week.
HAHA, big joke that...
Newsflash: It doesn't work.
Holy crap!
I should be plugged up 'til September at the earliest.
Instead I am considering buying stock in Charmin...
Um, have I ever mentioned that there is only one toidy in this house?
(The way I see it, that is one of the best reasons for me never to get married again).

Scenario(s) here:
Picture these if you will...

Casey,
...barfing.

Me,
stepping on the cat,
jumping hurdles over the dog,
and pushing my poor sick child down the steps to get her out of my way...
hehehe
OK, it really wasn't like that.
But(t) only because I had dibs on "The Throne" for this past week...

And life goes on...
Desperate times calling for desperate measures, I found myself rummaging through the cupboard... and finding a very old prescription of mine for Lonox.
Since Casey has the generic of this, (AND a more recent prescription), she offered me one of hers.
HAHA
Didn't work.
As I continued to spend the better part of my waking hours behind that closed door, I was finally talked into taking another.

The 2nd one I took 'seems' to have done the job...
(No pun intended Berta).

Time will tell.

Have a "wunnaful" Monday; my love to all.

XOXO
Anne

Web Counter

Originally posted to my Y! 360, Monday March 24, 2008 - 08:10am (CDT)

Catching Up...

Catching Up...

Casey cooks up a few shrimp for lunch...

.

Good Afternoon All;

First of all, to let you all know I am still having a very hard time navigating anywhere on Multiply. It takes forever for your pages to come up and to load and to go to a next blog or to look at anything. Please forgive me for not getting around as I once did back in the old days of our 360 world. You are all still so very special to me. And to those that I can still get to your blogs on 360, I say Thank you!

And on to my blog...

I apologize for not writing; having just been so very tired. Also having had to keep myself off the phone line too, as we waited (and waited) for just one magical return phone call from Froedtert.
I cannot begin to tell you how many times I repeated Caseys story to anyone willing to listen to me down there. Thank goodness they have an 800 number.
Only one person that answered wanted (demanded) to give me the direct number to the GI Clinic.
Refusing that, she then wanted to know WHY I wanted to talk to them-
(Sorry lady, even I know your job is NOT to prequalify anyone)...

Mostly though, I got sent to a lot of voice mails and promptly forgot how to act when a real LIVE person came on the line!
hehehe

Yes, I will be bringing her down next Friday... Earlier if her pain returns.

Wait. She still has pain.
I brought her to the clinic yesterday. The hospital had only given her a few days worth of the Oxycontin and Oxycodone anyway. Her regular doctor is still out of town, and we met another very nice doctor who actually took the time to familiarize himself with Caseys medical history, and with the latest "erred" record from St. Marys Hospital here in town.
(And I use the term "erred" lightly)...

Yes, I get angry about all of this, because there have been so many times that I have felt so very helpless just watching as the medical profession has done little or nothing.
'Jewel' said it best... "My whole goal is to keep my spirit intact. If that doesn't happen, none of this is worth it."

Due to the nature of the beast inside of Casey, they now have switched her to two different types of morphine. Like the Oxy drugs she was on, one is longer acting, one is shorter. But hallelujah, they seem to be working a bit better for her pain too!

She has an unknown spot on her liver.
Also something in the right midsection of her right lung too. (This is nowhere near to where they had done the pleurodesis or the partial removal of her lung either).

Too many questionable things that they failed to even inform us of.

Her ECG had come back 'abnormal' as early as her trip to the ER- And had remained UNCHANGED as she had that crushing pain in her chest and that seizure. (The episode where they tried to tell us it was anxiety)? Yeah, I don't think so!
WTF??? (Sorry, but I am so far past trying to be nice)...
CLICK HERE if you missed that story.

This happened the night before they released her???
What in Gods name were these 'professionals' thinking?
Or am I wrong to be concerned, (mountains out of molehills and all that)?
>sigh< I am simply losing my mind...

Of course I also wonder WHY on earth her own father has not contacted/visited her?
(I called his work when no one would answer at his home or even his cell).
And what of her two eldest sisters?
(Oh yes, they know. I raised them better than that, this blog is open, and they are NOT stupid).
This is NOT the time to be playing your childish, petty, and stupid games!

~~~

As I woke yesterday and after the sun had come up, I realized I had to get out of the house (or do the damn dishes).
hehehe
I chose the walk to the woods with the dogs. After all, it has been over that magical 32 degree mark for a while during the days here, and we have also had enough sunshine to remove a bit of the depth of the snow.
As it was early and still chilly, I put the old snowpants on anyway, and the snowmobile boots...

.

.

Mama Milly runs way ahead of Punk and I...

The Punk always has to turn around as if to ask me, "Why so slow?"

.

.

Miss Milly, way back by the woods...
(And, I think, with the ball she had left there 2 weeks ago)!

.

.

While Punk waited for me to catch up, she inspected a furrow...

Nothing too interesting...

.

.

.

So she comes running back to me to tell me to "HURRY!"

The snow was still quite deep in places.
I tried to stay on top of the plowed furrows.

.

.

Part of the river is actually open!!!

Milly, actually is down in the weeds (lower left quad) in this picture.

And even with my coaxing, Punk would NOT go down.

.

.

Maybe her STICK INCIDENT is still too fresh in her mind.
And she wasn't about to be taking any chances.
(Click here if you don't know what happened to her eye)
Her eye does seem fine.
Though I still must bring her in for her recheck.

.

.

Staggering back home about an hour later~ Hey, what can I say??? I'm out of practice fighting snowbanks and all ...between my extreme back pain, and the lack of snowfall. (No Mother Nature, this is NOT a complaint)!
So, I actually took a break. Realizing a bit too late that sitting down was something that I should not have done with respect to my stupid back, I jokingly told Punk to "go get Casey"...

.

.

...And she was off like a shot!
But returned just as quickly,
She must've realized she had no opposing thumb to open the door.
hehehe

.

.

In the meanwhile, her wandering Mama Milly had disappeared off to places unknown once more.
I have no idea where she goes; and as I stumbled back into the yard, I got into Caseys car and drove down the road looking for this wandering spirit of a dog that I have.
No luck...
But she did return home about 45 minutes later...

I'd better close for now and get busy. I believe I have about 9 months of dishes to do. (OK, maybe it only looks like that)... And of course my ever present, and beckoning laundry hamper.

Time for me to fly!

I hope you are all having a wunnaful, warm week.

My love to all.

XOXO,
Anne

Free Site Counter

Posted on Y!360 on Thursday March 20, 2008 - 01:38pm (CDT)

Casey. Re: An Open Letter to St. Mary's Hospital in Green Bay...

 

.

.

(For the hospital staff who cared for my daughter)...

Good Morning;

I have a few questions for you.

On March 8th, 2008, in the very early morning, Casey was admitted to your hospital, experiencing yet another flare~up of pancreatitis.

She was discharged over a full week later, on March 16th.

During the course of these 8+ days, she was told to eat as tolerated.
She was then told not to eat.
She was then told to eat anything but fats.
She was then told to eat only a liquid diet, but then added starches.

She was treated for her #10 pain.
First by IV, then by pill.
(Not a problem until you take into consideration all of the nausea she was experiencing).

Her nausea was treated like her pain.
First by IV, then by pill.
Then by nothing. ?!?!?

She infiltrated ALL of her IV's.
No surprise there, as she is 21, so she MUST receive an adult sized IV, right? (These, even AFTER she requested pediatric IV's).

*Note to you all...
Over the course of the past two and a half+ years, she has had over a dozen surgeries, and literally 100's of IV's. 
So too it should come as no surprise to anyone that SHE KNOWS WHAT WORKS, and what does not.
(But your nurses knew better)!

CaseyAnne is allergic to any tape, save for tagaderm.
(Here again, she actually KNOWS what works, and what does not).
Paper tape and plastic, hypo~allergenic, and all the others, only leave her covered with hives...
(Again, your nurses knew better)!

I watched, twice, as your nurses actually ARGUED with Casey, telling her that NOBODY was allergic to these tapes.
WTH?

Wrong.
(And THOSE were only the times that I was in attendance)...

Please do not even get me started on that suppository again.
(CLICK for that story).

You have once again treated her symptoms.
(Nothing special there, folks).

Should the truth must be known, what she really needs is for someone to actually treat her illness, her failing pancreas.
(And in this day and age, I do not feel this is too much to ask of our advanced medical profession)!

I do not believe it is too much to ask for a call back from Froedtert either.

• For your doctors... (Did they/he even call)?
• For my daughter. (She has called for the past few months).
• Or for myself. (I am almost positive they do NOT want MY call today). Trust me on that.

Furthermore, I do not believe that it was too much to ask for a DOCTOR to have signed her discharge papers yesterday?
How very odd that these were signed only by a nurse)?!?
I truly must get out from under my rock.

Oddly enough, she was released LESS THAN 24 HOURS after experiencing crushing chest pain, an inability to breathe, and we all watched as her entire body shook and trembled for the better part of an hour.
She was given lovenox for any possible blood clot, and also given atavan.
(Not sure of the atavan, as I have only heard of it on "House").
Will have to look it up. Probably was for the seizure and the tremors.

Thankfully, her chest CT was negative for clots.

So, what of this terrible pain in her chest?
Did she miraculously recover overnight?
(Because according to her, it still hurts on and off, and she told you this before she was discharged).

What of the FACT that her heart rate has been 110+bpm for the past three+ weeks, and soaring over 200bpm many times, even at rest???
And why do medical personnel, nurses and doctors alike, brush this off as "medically~insignificant" ?

And if you, as her first line of treatment, have NOT listened to her, how the effing hell can we expect someone else to?

• Yes, she is home.
  Yes, she is in pain.
  Yes, she is taking your meds as prescribed.
  (And yes, I will be making those phone calls)...

________

On the bright side...

...Her homecoming made more than one person very happy...

.

.

The ever~vigilant and tender Greg.
It was he who spent each and every night in the chair at her side.

.

.

Jenny Mella!
And Mister Sputty too!

.

.

The Punkster-
Who was VERY happy to get her back scratched!

.

.

Even if she missed a spot!

.

(Brave girls, wearing white socks on my floors)!

.

.

But yes, there ARE worse things than dirty grey white socks...

Love to all.

XOXO
Anne

Free Website Counter

Posted to my Y! 360 Monday March 17, 2008 - 06:50am (CDT) 5

Slow Motion...

Slow Motion...

Casey and her "Luckier" Bear~
~yesterday afternoon

.

Good morning;

I will not last long here because I am seeing aura even now. I need to sleep a bit more and hope the migraine does not take hold for long...

But first to let you know what happened last night.

I received a frantic call from Berta.
Casey had been complaining of severe chest pain and shortness of breath.
Within a few moments she had begun shaking from head to toe.

The doctor immediately called for a portable chest xray-
When the Xray people got to Caseys room, Roberta and Greg were shown out immediately...
Suddenly the doctor and many more nurses were paged to KC's room.

Berta called me again, -if I thought her 1st call was frantic, I was wrong...
But with this 2nd call, I was on my way without doing any of the things that normal people do when they leave their homes. (I might have broken a speed law or two, and I might have stopped and then gone through a red light to get there faster).

By the time I got to her room there were still three nurses and a doctor present. They had already also run an EKG, which was normal- save for her heart rate being so high.
Incidentally, her heart rate has been over 110 for the last few weeks. When I have asked these health people about that, they have always dismissed it saying, it's this, that or the other thing...
Making me wonder now.

Greg and Roberta had been allowed back into her room...

.

.

Greg and CaseyAnne
This photo speaks volumes...

.

.
Remember that IV they said they could not 'do' another of? She now had two running!
One for anesthesia, and one for the atavan and something else.
Thinking she may have a blood clot in her lungs, they had also given her an injection of lovenox to her tummy.

My longtime wonderful friend Lynn, (who is also Caseys Godmother), came almost immediately; even Randy showed up. We were all so worried sick...

After what seemed an interminable wait, she was taken to xray for a CT Scan.
Another LONG wait before being told it was negative for blood clots.

Why is it that all this stuff seems to happen in slow motion; and yet when the doctors are talking to you, it seems as though they are chattering... ???

And now the task begins to show what may be causing the pain in her chest, and the body tremors.

Perhaps I shall nap a bit before I head back up there.

I hope you are all having a good weekend.

My thanks and my love to all.

XOXO
Me

 

Posted to my Y! 360 Sunday March 16, 2008 - 07:02am (CDT)

My Blanket~Hidden Child

Just a few quick words here.

I am typing in the darkened hospital room as CaseyAnne gets a few moments of sleep.

She seems so very still like this... that at times I have to listen, and ever so quietly, for her to breathe.

They have removed her Iv's but have left them in her arm for now.

She is on 2 oxy~something drugs by mouth; even though they have told her that she may no longer eat anything.

She is in awful pain, curled up; into this little blanket covered ball...

In a way, she has almost allowed the goddamn, unrelenting, pain to win.
NOT ON MY WATCH.

She has begun to feel as though she is a burden to those of us who love her; and has stated that she does not care to go on like this.

I worry more now for what the constant pain has done to her mental health, as much as what the trapped enzymes have done to her pancreas during this past LONG week for her...

Still for now, she sleeps.
So still.
May her dreams ALL be good and sweet ones.

I do love her so. Pray.

Me

Friday March 14, 2008 - 12:38pm (CDT)

Same Old... Same Old...

Same Old... Same Old...

Ummm... "Refreshing Ice" ?!?!
Is Kwik Trip kidding? (Or just idiotic)?
hehehe

Personally, I am quite tired of "Refreshing"
(And yes, we have had some fluffy white 'refreshment' overnight).
And I think that little bit broke the record for all time seasonal snowfall
NOT THAT I CARE!
?

.

Good Morning ALL;

I remain completely moved by those of you that have taken of your time and hearts to leave comments and notes for us; to offer your prayers and thoughts, and to share of your own lives and experiences.
And I also know it is asking a lot, but please keep 'em coming! We enjoy all of your thoughts.

I have no more news than I had the last time I wrote.

Casey remains hospitalized in severe pain, seemingly uncontrolled by her meds.
She still has bouts of nausea too.
She had the Froedtert ordered CT Scan of her pancreas yesterday morning. The doctor reported within a few hours back to her.
(And yes, we are in Green Bay at this time; she will transfer to Froedtert when they have a solid plan for her).
Yesterdays CT Scan showed nothing out of the ordinary.
(While that is always a good thing, it only further confounds the mystery of her illness too).

And it is very disheartening to STILL be hearing "we do not know" ...
1. what is causing this...
2. what the answers are...
3. what the cure may be...
...after two years of this for her.

Personally, I would have her rechecked for CF. That would explain many, many of her symptoms and illnesses.
I do not know if there are many false negatives for that sweat test she had.
(But you can count on the fact that I will find out).

Miss Punk seems to be alright; although the discharge from her eye seems to be changing to a yucky color indicative of infection. Not sure if this is normal- I have been putting her gentamicin eye drops in religiously. I will call Dr. Spires early today and see what he says. There is not a lot of discharge, but what is there is raising a flag for me.

As for myself... As of last Saturday morning, my middle back has been killing me. This is a first for me. I have a touch of arthritis in my lower back, and the neck pain too. But my mid back has always been fine.
I attributed it to the fact that I was probably shaking like a leaf while I drove The Punk to the vet the day before, and then sped off to get Casey to the clinic too. And I don't think that shaky feeling went away til I fell asleep that night...

Upon waking on Saturday, it felt as though I had been kicked in the middle of my back... And it has had the nerve to get progressively worse. What the hey???

.

.

He might be hiding now,
but I swear, as soon as I find that jackass that kicked me
I shall send his smug sorry soul straight to the soap factory too!
hehehe

(Photo stolen from Sesame Ellis on Flickr).

.

.

But isn't he cute!

I'd better close for now- Casey has just called, and has received both bolus on her pain meds and her phenergan and still has terrible pain and nausea. She said not to come up though as she does not want to wake Greg who is alseep in the fold out chair in the room.

I feel so very impotent...

Love to you

XOXO
Me

Free Counter

Originally posted to Y! 360, Thursday March 13, 2008 - 05:16am (CDT) 106