http://www.inspire.com/groups/national-osteoporosis-foundation/discussion/death-by-reclast-janets-story-1/
National Osteoporosis Foundation Support Community - Inspire
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Hi everyone, and thank you for doing the click above-
This is the drug I had been given in March. I am due for another infusion of the same next March...
I don't think I will be having it. It seems as though, perhaps, I have lucked out; by bypassing these awful side effects- especially those that cause death!
After reading many stories, (not all as sad, yet, as this one), I am thinking that perhaps I did not do my necessary homework as well as I should have.
Shame, shame, SHAME on me.
As I replied to my letter, "I have a dentist appointment tomorrow- A referral. Casey has written and said she would come out early- Having her here should calm me down a bit. I have NO idea what they will think to do with my mouth.
I saw an ad on the TV, late-night, a while back- and it was for some device that fits over your existing teeth. I will ask them about that. I just hope they don't think they will be pulling any teeth. That is *not* going to happen.
And I do realize the %'s would be in my favor. (Then again, I think about how my luck goes). Not sure I would ever care to take the risk.
Maybe teeth are overrated?" (But heck, I don't like pudding)!!!
XOXO
Me
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PS
I had written to Polly earlier.
Part of her reply was this: "I don't know much about those injections you get in your back--I'll call and talk to you about that but maybe will wait a day or two to see how it is going. It still sounds to me like you are trying to do things that you shouldn't do, which could make things worse (which you know and I promise to quit saying now). I don't think you made a mistake trying the bone density drugs given your stage of osteoporosis--you had to try something and who knows--they may help build up some bone.
Some bone is better than no bone and that jaw thing happens with all of those kinds of drugs and it doesn't happen to a very high percentage of the women taking them (I think it was less than 1%---having said that I am still glad that I got off the Fosomax because I wasn't bad enough to use it long-term;
However, my mother had been using it for many years with no problems).
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So who knows?
Maybe I really *am* one of the lucky ones...
