7/25/08 WE ARE HOME~ & ~Update

_____________________

Added 7-24-08

Hi all...
I dropped Casey at her apartment- (Greg was waiting with open arms of course)!
She is tired- And more than a bit let down.

I share her sentiments...

Those of you that she had cell numbers for texting have already been updated by Casey.

She did not receive good news. But not necessarily bad news either. (I might be in a bit of denial here too)...
But we still have hope- 
(Remind me I said that if I ever forget)...

We go back in August for an EUS. (Endoscopic Ultrasound).

Love to all. Hope all is well with all of you.
I am beat.
Will check in tomorrow morning.

XOXO
Anne
______________________

Added 7-23-08...


Please visit Casey's new blog for updates.
(click on word "Casey's", above)


XOXO
Anne
______________________

7-23-08

Love to you all for your prayers and love sent.
With our stop at Froedtert and a few more records that they were STILL unprepared for, we arrived in Rochester early yesterday afternoon, and are tucked away in the hotel for a few moments more as we wait to find our way around Mayo's maze.

Will let you know how that all goes.
Casey has boxes and boxes of stuff, records, diagnosis', slides, etc...
(Hope we don't have to carry those things TOO far)!

Have a wunnaful Tuesday... (I'll get to 10 Thought Tuesday later). 

Love to all
XOXO
Me

______________________

Hi Everyone,
Not too much news around here...

But we will be leaving tomorrow...
First to Froedtert, who (in their own wonderful style) completely "effed~up" Caseys request for ALL of her records there.
She must hand deliver them all to Mayo, and at Froedtert, one hand knows not what the other is doing...

After I raise hell there, and we get what we came for, we will be heading to Rochester.
Mayo!
(Yes, you may start singing now)!
hehehe

Here is Sweet Pea's rendition, (sang to the tune of Day-o)...

from Jul 15
take a deep breath now...

May-o, May-ay-ay-o
Daylight come and she wan' go eat
Duh, Dr St Mary say duh, Dr say duh, Dr say duh, Dr say duh, Dr say duh-uh-uh-o
Daylight come and she wan' go eat

Work all night on a drink a'water
(Daylight come and she wan' go eat)
clutch the belly till morning come
(Daylight come and she wan' go eat)

Come, Mr. Mayo Mon, belly make better
(Daylight come and she wan' go eat)
Come, Mr. Mayo Mon, belly make better
(Daylight come and she wan' go eat)

It's six day, seven day, eight day, BRUNCH!
(Daylight come and she wan' go eat)
Six day, seven day, eight day, BRUNCH!
(Daylight come and she wan' go eat)

May, Dr say May-ay-ay-o
(daylight come and she wa'n go eat)
Duh, Dr St Mary say duh, Dr say duh, Dr say duh, Dr say duh, Dr say duh

(Daylight come and she wan' go eat)

A beautiful brunch a'food cooked by mama
(daylight come and she wan' go eat)
Hide thee Deadly Doctor of St Mary
(Daylight come and she wan' go eat)

It's six day, seven day, eight day, BRUNCH!
(Daylight come and she wan' go eat)
Six day, seven day, eight day, BRUNCH!
(Daylight come and she wan' go eat)

May, Dr say May-ay-ay-o
(Daylight come and she wan' go eat)
Duh, Dr St Mary say duh, Dr say duh, Dr say duh, Dr say duh, Dr say duh

(Daylight come and she wan' go eat)

Come, Mr. Mayo Mon, belly make better
(Daylight come and she wan' go eat)
Come, Mr. Mayo Mon, belly make better
(Daylight come and she wan' go eat)

May-o, May-ay-ay-o
(Daylight come and she wan' go eat)
May, Dr say May, Dr say May, Dr say May, Dr say May, Dr say May-ay-ay-o
(Daylight come and she wan' go eat)...

I am still laughing!!!

~~~XXXXX~~~
This posting is private,
and if you will look above you will see who I chose to share this with.
Some people I simply do not trust.
Some never come to my blog anyway.
Some are just nosy.
Some have contact with others that I don't care to have knowing I am gone...

In all seriousness, and although we have waited a LONG time to get CaseyAnne to Mayo, I don't mind sharing with you that I am scared sh*tless for what will happen now.
My own godawful fear of the unknown if you will...

It is this fear that has kept me from including Casey in this missive. That would go against any positive thinking that she needs right now.

I have heard nothing but good things about Mayo.
We will share our own version as it unfolds.

Oops.
Hmmm....
At this point in time I can truthfully say that I have no idea where my darn laptop is.
(Hopefully it is in the bedroom closet where I usually keep it)...

She is to be there on the 22nd.
I left the extra day to reserve for any possible car malfunctions, anxiety attacks, and anything else that might throw a wrench into her appointment.
It is too important to miss.

They told her to plan for at least a 3-5 day stay.
Speaking with a few others, they said to plan for about 2 or 3 weeks.

Like I said, "the unknown"...

The Punkster will be going with us.
Miss Milly will remain here; with Randy and Miss Kelli to keep an eye out every day.
...And I have wonderful neighbors too.
Family made them relatives; luck made them friends as well.

I will be checking in as often as possible, even today- I still have much to do before we leave.
Packing.
Cleaning.
Packing.
Cleaning.
Packing.
Laundry.
Packing.

And a trip to Petco too as Miss Milly might be needing her food before we return.

And life goes on I suppose.

Hopefully you have seen the new pictures of Big Sam on Miss Marucks blog... (Link is the first link shown).

I am so glad to have Marie in my life and in my heart. I can leave town a bit more peacefully knowing that he is in the most capable and loving hands.
She sees Master Gabriel a lot too.

I'd better close for now. (Did I mention that I still have to pack)?

Please wish Casey well.
And keep those prayers coming...

Love to all.

XOXO
Anne