My Brother and I...

 

"My Brother and I"
one of the many explanations from the Mayo Brothers
about their core system of values.
As posted on the wall of the subway to Gonda.

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Good Morning Everyone;
Yes, we are back from our visit to Rochester, to the Mayo Clinic.
And have learned little from this visit, that we already didn't know.

Casey is now scheduled for an EUS, (Endoscopic Ultrasound) next month. Am hoping they might find out a bit more then.

She is a bit let down by the arrogance of so many of these doctors. And especially those that barely do their jobs; and simply go home.
(While they do of course have a right to have a home life, I am thinking they have an obligation to their patients too).

She has had so many just put their hours in, forgetting about even their own humanity in the process...
Perhaps for them, then it is time to really go home and get another job; one that a person can honestly let go at the end of the day.

We had to get all of those files, records, xrays, and slides... Am wondering "what for?" we did that all for now.
Expensive, (and oh so frustrating an endeavor), to be told she must carry them in to Mayo.
The doctors flipped through a few pages, and declared that since her pancreatic enzymes were not high enough for them that they probably couldn't do anything for her. (I didn't know I had to research their necessary levels before wasting all that gas and money).
All I know for sure is that her levels of amylase and lipase are high enough to leave her hospitalized (and how many times now?), and to hold her in pain every day of her life.

• Some of her pain is treated.
• Most of it is not.

• Some patients are treated.
• Some are not...

Kind of a crappy way to handle things.
Go for the glory, boys.
Leave my daughter suffer, will ya?

• There have been times that her enzymes have been 10 times normal.
• There have been hospitalizations when those levels were only 2 or 3 times normal.

Guess they just discarded all of that.

So much for the above title and sign.
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Besides my beautiful co-pilot,
there WERE things that made the trip worthwhile.

Like points in Wisconsin where the glaciers never touched.
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Seeing 'life' growing from rock...
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Crossing the Mississippi...
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Learning that Punk did not care one whit about any of that...

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She slept mostly there and back
'Til 'nature' called every now and then

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But she surely cared what Casey was munching on...
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(Especially when she didn't get any)!
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Driving downtown to all the hospitals
made us snicker when we saw this water tower

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I dropped Casey off,
leaving her with one of the security guards;
and found a place to park.
In the meantime, she got all registered and checked in.
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Before we went up to the 9th floor...
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We met the nicest lady (Deborah),
as we took some pictures of our new surroundings.

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Seeing us both with our cameras,
she offered to take our picture,
together...

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The view from the Gonda Building (part of Mayo),
was quite impressive.
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It was then that we met with the doctors...
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96/60
~Taking the average of 6 separate readings.
(Borderline low blood pressure runs in my family).

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After which they scheduled an MRI.

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This whole test was flubbed from the get-go.
Too bad none of these 'professionals' actually LISTEN TO HER.
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Since that was messed up, it was time to go back to the hotel
(after speaking with the doctor who'd messed up)...
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But first, one more picture before we left...

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And back home for us then...

"My Brother and I"???
No. I don't think so.

Love to all.
From Flintville!

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hehehe

Have a 'wunnaful' weekend!

XOXO
Anne

*****Special note to Casey*****

Dear Sweet Daughter of Mine;
As you read this, know that I promise you WILL get you fixed.
No matter what it will take.
Foreverlonger...
XOXO,
Mama D.

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originally posted to my Y! 360, Saturday July 26, 2008 - 06:57am (CDT)