Last month, Goodyear leukemia patient Mark Price became a poster child for the impact of budget cuts to AHCCCS after his doctor found donors who matched his bone marrow a day after Price lost coverage. Price's story gained attention nationally and an anonymous donor later covered all costs for his surgery.
Because bone marrow comes from living donors, the donated marrow was still able to be used at a late date.
It's a different story for liver-transplant patients.
The chances of finding a liver donor are slim because these transplants usually are livers from deceased donors and the demand far exceeds the supply.
If a donor is found, the surgery must take place in less than a day.
AHCCCS patients who lost transplant coverage have been allowed to stay on the waiting list, but when a match is found they are faced with a ticking clock to come up with up to half a million dollars to pay for the procedure.
Francisco's story
Monday night, Felix's wife received a call from a family friend whose wife was nearing death and wanted to donate her liver to Felix. Their organs matched, and doctors prepared Felix for a surgery set for 10 a.m. Tuesday.
Banner Good Samaritan Medical Center gave Felix until that time to come up with the money for his surgery. His surgery, liver transplant due to complications from hepatitis C, was one AHCCCS stopped covering Oct. 1.
Despite efforts to reach out to the media and the public, the family could not raise the money. Felix was discharged from the hospital and his liver went to the next patient on the waiting list.
"It was his day today. If we had the money, someone to pay for it, he would have received the liver," said Flor, Francisco's wife. "How can people make this decision? How does one person have the right to decide who's going to live and who's not?"
There are at least 23 AHCCCS patients at Banner Good Samaritan waiting for transplants, hospital spokesman Bill Byron said.
Byron said patients must meet three criteria before receiving transplants: they must be healthy enough for a transplant procedure, they must have a network of people who can support them after surgery and they must be able to afford the surgery.
Patients who can't afford the surgery after finding a match are placed on a hold list until they can pay for it.
Flor Felix has applied to the National Transplant Assistance Fund so that the family can raise money for her husband's surgery. Byron said doctors believe Francisco will be healthy enough to receive a transplant if another match comes along within the next year or two.
According to United Network for Organ Sharing, a national non-profit that is contracted with the federal government to manage the U.S. organ-transplant system, the average wait time for a liver is 796 days. Francisco has been on the waiting list since April and only got this chance so quickly because the family friend wanted to donate to him.
AHCCCS cuts
Legislators earlier this year decided to stop paying for certain transplants based on analyses by AHCCCS.
Certain kinds of pancreas, lung and bone-marrow transplants are among those no longer covered.
AHCCCS stopped covering liver transplants for hepatitis C because of the procedure's low long-term success rate.
According to AHCCCS, studies showed that when a patient with hepatitis C receives a liver transplant, the virus can infect the new liver within 24 hours. The virus returning is the No. 1 cause of the new liver failing, according to the analysis.
But according to the national transplant organization, transplant is the best treatment option for patients with end-stage liver failure.
Political battle
Following the public reports of Price's transplant story last month, state lawmakers asked Gov. Jan Brewer to reconsider the cuts. Tuesday, a group of Democrats asked again.
But Brewer's spokesman, Paul Senseman, said the governor would not consider a special legislative session unless someone proposes how the state would make up for the $1 billion gap in the AHCCCS budget.
Senseman blames federal health-care mandates for the program's financial struggles. The federal government requires states to cover many things under the program, but transplants are not one of them.
"On multiple fronts we remain hopeful that our ability to design a sustainable and flexible service program would be restored" now that there is a Republican majority in Congress and Arizona is a part of a 20-state lawsuit against the federal government for requiring all Americans to have health insurance by 2014, Senseman said.
AHCCCS cuts were made before the federal health-care reform act passed, said Sen.-elect Kyrsten Sinema, D-Phoenix. Sinema said Brewer should use federal stimulus money to reinstate transplant cuts.
Democratic state Rep. Matt Heinz, a physician at the Tucson Medical Center, said it is contradictory to blame AHCCCS cuts on federal mandates while reasoning that transplant coverage could be cut because it is not federally required.
Rep. John Kavanagh, R-Fountain Hills, chairman of the House Appropriations Committee, said he would like to revisit transplant cuts when the Legislature is back in session in January.
by
Michelle Ye Hee Lee - Nov. 17, 2010 12:00 AM
Read more: http://www.azcentral.com/arizonarepublic/news/articles/2010/11/17/20101117ahcccs-budget-cuts-phoenix-man-liver-transplant.html#ixzz15mQYE6JS
http://www.usatoday.com/news/nation/2010-11-17-arizona-cuts-liver-transplant_N.htm
http://www.azcentral.com/arizonarepublic/news/articles/2010/11/17/20101117ahcccs-budget-cuts-phoenix-man-liver-transplant.html
Arizona governor Jan Brewer had the gall to blame “Obamacare.”_______________________________________